How Can Consumer Associations Support Research And Researchers?

Tom Weidig1 and J. Scott Yaruss2
1British Stammering Association, 15 Old Ford Road, London E2 9PJ, United Kingdom.
2Communication Science and Disorders, University of Pittsburgh, 4033 Forbes Tower; Pittsburgh PA 15260, USA


The British Stammering Association (in the UK) and the National Stuttering Association (in the USA), among other consumer organizations, have created research committees to support stuttering research. These organizations sought to gather representatives from various consumer associations around the world to exchange ideas and explore opportunities for collaboration. This paper summarizes the interactions among these organizations, both before and after the face-to-face meeting at the IFA World Congress, about issues relevant to stuttering research. Key activities for collaboration that were discussed included the creation of a mailing list of all research representatives, establishment of an electronic information archive on stuttering research, and expansion of a dialogue between organizations regarding lobbying and fundraising experiences.
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